A singing choir: Understanding the dynamics of hope, hopelessness, and despair in palliative care patients. A longitudinal qualitative study.
Identifieur interne : 000136 ( Main/Exploration ); précédent : 000135; suivant : 000137A singing choir: Understanding the dynamics of hope, hopelessness, and despair in palliative care patients. A longitudinal qualitative study.
Auteurs : Erik Olsman [Pays-Bas] ; Carlo Leget [Pays-Bas] ; Wendy Duggleby [Canada] ; Dick Willems [Pays-Bas]Source :
- Palliative & supportive care [ 1478-9523 ] ; 2015.
Descripteurs français
- KwdFr :
- Adaptation psychologique (MeSH), Adulte d'âge moyen (MeSH), Attitude envers la santé (MeSH), Espoir (MeSH), Femelle (MeSH), Humains (MeSH), Mâle (MeSH), Recherche qualitative (MeSH), Soins palliatifs (psychologie), Sujet âgé (MeSH), Sujet âgé de 80 ans ou plus (MeSH), Études longitudinales (MeSH), Événements de vie (MeSH).
- MESH :
English descriptors
- KwdEn :
- MESH :
Abstract
OBJECTIVE
Hope, despair, and hopelessness are dynamic in nature; however, they have not been explored over time. The objective of the present study was to describe hope, hopelessness, and despair over time, as experienced by palliative care patients.
METHOD
We employed a qualitative longitudinal method based on narrative theories. Semistructured interviews with palliative care patients were prospectively conducted, recorded, and transcribed. Data on hope, hopelessness and despair were thematically analyzed, which led to similarities and differences between these concepts. The concepts were then analyzed over time in each case. During all stages, the researchers took a reflexive stance, wrote memos, and did member checking with participants.
RESULTS
A total of 29 palliative care patients (mean age, 65.9 years; standard deviation, 14.7; 14 females) were included, 11 of whom suffered from incurable cancer, 10 from severe chronic obstructive pulmonary disease, and 8 from severe heart failure. They were interviewed a maximum of three times. Participants associated hope with gains in the past or future, such as physical improvement or spending time with significant others. They associated hopelessness with past losses, like loss of health, income, or significant others, and despair with future losses, which included the possibility of losing the future itself. Over time, the nature of their hope, hopelessness, and despair changed when their condition changed. These dynamics could be understood as voices in a singing choir that can sing together, alternate with each other, or sing their own melody.
SIGNIFICANCE OF RESULTS
Our findings offer insight into hope, hopelessness, and despair over time, and the metaphor of a choir helps to understand the coexistence of these concepts. The findings also help healthcare professionals to address hope, hopelessness, and despair during encounters with patients, which is particularly important when the patients' physical condition has changed.
DOI: 10.1017/S147895151500019X
PubMed: 25912395
Affiliations:
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The objective of the present study was to describe hope, hopelessness, and despair over time, as experienced by palliative care patients.</p></div><div type="abstract" xml:lang="en"><p><b>METHOD</b></p><p>We employed a qualitative longitudinal method based on narrative theories. Semistructured interviews with palliative care patients were prospectively conducted, recorded, and transcribed. Data on hope, hopelessness and despair were thematically analyzed, which led to similarities and differences between these concepts. The concepts were then analyzed over time in each case. During all stages, the researchers took a reflexive stance, wrote memos, and did member checking with participants.</p></div><div type="abstract" xml:lang="en"><p><b>RESULTS</b></p><p>A total of 29 palliative care patients (mean age, 65.9 years; standard deviation, 14.7; 14 females) were included, 11 of whom suffered from incurable cancer, 10 from severe chronic obstructive pulmonary disease, and 8 from severe heart failure. They were interviewed a maximum of three times. Participants associated hope with gains in the past or future, such as physical improvement or spending time with significant others. They associated hopelessness with past losses, like loss of health, income, or significant others, and despair with future losses, which included the possibility of losing the future itself. Over time, the nature of their hope, hopelessness, and despair changed when their condition changed. These dynamics could be understood as voices in a singing choir that can sing together, alternate with each other, or sing their own melody.</p></div><div type="abstract" xml:lang="en"><p><b>SIGNIFICANCE OF RESULTS</b></p><p>Our findings offer insight into hope, hopelessness, and despair over time, and the metaphor of a choir helps to understand the coexistence of these concepts. The findings also help healthcare professionals to address hope, hopelessness, and despair during encounters with patients, which is particularly important when the patients' physical condition has changed.</p></div></front></TEI><pubmed><MedlineCitation Status="MEDLINE" Owner="NLM"><PMID Version="1">25912395</PMID><DateCompleted><Year>2016</Year><Month>09</Month><Day>16</Day></DateCompleted><DateRevised><Year>2015</Year><Month>11</Month><Day>23</Day></DateRevised><Article PubModel="Print-Electronic"><Journal><ISSN IssnType="Electronic">1478-9523</ISSN><JournalIssue CitedMedium="Internet"><Volume>13</Volume><Issue>6</Issue><PubDate><Year>2015</Year><Month>Dec</Month></PubDate></JournalIssue><Title>Palliative & supportive care</Title></Journal><ArticleTitle>A singing choir: Understanding the dynamics of hope, hopelessness, and despair in palliative care patients. A longitudinal qualitative study.</ArticleTitle><Pagination><MedlinePgn>1643-50</MedlinePgn></Pagination><ELocationID EIdType="doi" ValidYN="Y">10.1017/S147895151500019X</ELocationID><Abstract><AbstractText Label="OBJECTIVE" NlmCategory="OBJECTIVE">Hope, despair, and hopelessness are dynamic in nature; however, they have not been explored over time. The objective of the present study was to describe hope, hopelessness, and despair over time, as experienced by palliative care patients.</AbstractText><AbstractText Label="METHOD" NlmCategory="METHODS">We employed a qualitative longitudinal method based on narrative theories. Semistructured interviews with palliative care patients were prospectively conducted, recorded, and transcribed. Data on hope, hopelessness and despair were thematically analyzed, which led to similarities and differences between these concepts. The concepts were then analyzed over time in each case. During all stages, the researchers took a reflexive stance, wrote memos, and did member checking with participants.</AbstractText><AbstractText Label="RESULTS" NlmCategory="RESULTS">A total of 29 palliative care patients (mean age, 65.9 years; standard deviation, 14.7; 14 females) were included, 11 of whom suffered from incurable cancer, 10 from severe chronic obstructive pulmonary disease, and 8 from severe heart failure. They were interviewed a maximum of three times. Participants associated hope with gains in the past or future, such as physical improvement or spending time with significant others. They associated hopelessness with past losses, like loss of health, income, or significant others, and despair with future losses, which included the possibility of losing the future itself. Over time, the nature of their hope, hopelessness, and despair changed when their condition changed. These dynamics could be understood as voices in a singing choir that can sing together, alternate with each other, or sing their own melody.</AbstractText><AbstractText Label="SIGNIFICANCE OF RESULTS" NlmCategory="CONCLUSIONS">Our findings offer insight into hope, hopelessness, and despair over time, and the metaphor of a choir helps to understand the coexistence of these concepts. The findings also help healthcare professionals to address hope, hopelessness, and despair during encounters with patients, which is particularly important when the patients' physical condition has changed.</AbstractText></Abstract><AuthorList CompleteYN="Y"><Author ValidYN="Y"><LastName>Olsman</LastName><ForeName>Erik</ForeName><Initials>E</Initials><AffiliationInfo><Affiliation>Section of Medical Ethics,Department of General Practice,Academic Medical Center,University of Amsterdam,Amsterdam,The Netherlands.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Leget</LastName><ForeName>Carlo</ForeName><Initials>C</Initials><AffiliationInfo><Affiliation>Department of Ethics of Care,University of Humanistic Studies,Utrecht,The Netherlands.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Duggleby</LastName><ForeName>Wendy</ForeName><Initials>W</Initials><AffiliationInfo><Affiliation>Faculty of Nursing,University of Alberta,Edmonton,Alberta,Canada.</Affiliation></AffiliationInfo></Author><Author ValidYN="Y"><LastName>Willems</LastName><ForeName>Dick</ForeName><Initials>D</Initials><AffiliationInfo><Affiliation>Section of Medical Ethics,Department of General Practice,Academic Medical Center,University of Amsterdam,Amsterdam,The Netherlands.</Affiliation></AffiliationInfo></Author></AuthorList><Language>eng</Language><PublicationTypeList><PublicationType UI="D016428">Journal Article</PublicationType><PublicationType UI="D013485">Research Support, Non-U.S. Gov't</PublicationType></PublicationTypeList><ArticleDate DateType="Electronic"><Year>2015</Year><Month>04</Month><Day>27</Day></ArticleDate></Article><MedlineJournalInfo><Country>England</Country><MedlineTA>Palliat Support Care</MedlineTA><NlmUniqueID>101232529</NlmUniqueID><ISSNLinking>1478-9515</ISSNLinking></MedlineJournalInfo><CitationSubset>IM</CitationSubset><MeshHeadingList><MeshHeading><DescriptorName UI="D000223" MajorTopicYN="Y">Adaptation, Psychological</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D000368" MajorTopicYN="N">Aged</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D000369" MajorTopicYN="N">Aged, 80 and over</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D001294" MajorTopicYN="N">Attitude to Health</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D005260" MajorTopicYN="N">Female</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D065026" MajorTopicYN="Y">Hope</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D006801" MajorTopicYN="N">Humans</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008016" MajorTopicYN="N">Life Change Events</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008137" MajorTopicYN="N">Longitudinal Studies</DescriptorName></MeshHeading><MeshHeading><DescriptorName UI="D008297" 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last="Leget">Carlo Leget</name><name sortKey="Willems, Dick" sort="Willems, Dick" uniqKey="Willems D" first="Dick" last="Willems">Dick Willems</name></country><country name="Canada"><noRegion><name sortKey="Duggleby, Wendy" sort="Duggleby, Wendy" uniqKey="Duggleby W" first="Wendy" last="Duggleby">Wendy Duggleby</name></noRegion></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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